Symposium on Personal Control of Genomic Data for Research

Perhaps you have had genetic testing. Ever wonder about who, how, and why you might get certain test results back? Ever consider sharing that information with researchers studying those with similar genetic problems so that clinical studies could get completed more quickly? As the technology allows quicker and more expansive DNA testing others are wondering too. Attend the symposium in Bethesda, MD or join the webinar all day on Thursday and half a day Friday!

September 26 – 27, 2019, Masur Auditorium, Building 10, NIH campus, Bethesda MD

Registration is now open for in-person and virtual attendance.

The symposium will host sessions on the following topics:

  • Motivations for and perceptions of participants controlling their own data

  • Facilitating personal control of sharing data: existing approaches and platforms

  • Risks and benefits to participants and their communities

  • Sharing data in healthcare settings – the role of individuals who wish to share their data