NIH’S undiagnosed diseases network introduced an online application portal

September 18, 2015

The Undiagnosed Diseases Network of the NIH has a “new online patient application portal that will allow patients who suffer from conditions that specialists have been unsuccessful at diagnosing to apply to all the program’s participating clinical sites, rather than applying to sites one-by-one.” The Undiagnosed Diseases Network (UDN) Gateway is planned to “replace the paper-and-mail application process that was formerly used.”  In addition to the Gateway, the UDN has added six additional clinical sites that will now cover a wider geographic range, which will each accept 50 new patients per year by 2017. These additional clinical sites are:

Baylor College of Medicine, Houston

Duke Medical Center, Durham, North Carolina, with Columbia University, New York City

Harvard Teaching Hospitals (Brigham and Women's Hospital, Boston Children's Hospital, Massachusetts General Hospital), Boston

Stanford Medical Center, Stanford, California

University of California at Los Angeles Medical Center

Vanderbilt University Medical Center, Nashville, Tennessee

Additionally, two DNA sequencing facilities have been added to the UDN network.

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