The Importance of Including You, Me, + All of Us in Health Research Today at 1:00 pm

The Importance of Including You, Me, + All of Us in Health Research Today at 1:00 pm

The Importance of Including You, Me, + All of Us in Health Research

Tune in today (10/15/19) at 1 p.m. ET to hear Edgar Gil Rico of the National Alliance for Hispanic Health and participant ambassador Dr. Randee Bloom discuss the importance of Hispanic and Latino participation in the All of Us Research Program.

This episode of the All of Us Speaker Series is in collaboration with AARP’s Create the Good and will be streamed on their Facebook page.

Your Voice Is Important!! Share Your Thoughts About Clinical Use of Human Germline Genome Editing.

Your Voice Is Important!!  Share Your Thoughts About Clinical Use of Human Germline Genome Editing.

The Royal Society and the U.S. National Academies of Sciences and Medicine have convened an international commission to develop a framework for considering technical, scientific, medical, regulatory, and ethical requirements for human germline genome editing and they want to hear from you!! The call for evidence is open until Friday 27 September 2019. Do you think this new technology should be used to investigate health outcomes? Share your thoughts and concerns!!

Doctors In U.S. Use CRISPR Tool To Treat Patient With Genetic Disorder, Sickle Cell Disease

Doctors In U.S. Use CRISPR Tool To Treat Patient With Genetic Disorder, Sickle Cell Disease

Sickle cell disease is the most common inherited blood disorder in the United States with approximately 100,000 Americans having the disease. Many of the disease effects can be life altering and life threatening. If you had this disease would you be open to participating in a clinical study with the potential to improve your life? Read more here about the first U.S. person on a clinical study using human gene and genome editing technology for Sickle cell disease.

Image from genome.gov

All of Us Research Program Launches Health Care Provider Engagement Campaign

All of Us Research Program Launches Health Care Provider Engagement Campaign

The All of Us Research Program is launching Providers for a Healthier Future to facilitate important conversations that will help advance precision medicine. As of July 2019, more than 230,000 people have enrolled in the All of Us Research study, including 175,000 participants who have completed the core protocol. 

See Dr Frances Collins speak about the All of Us Program 2019

See Dr Frances Collins speak about the All of Us Program 2019

The All of Us Research Program invites you hear a conversation with the NIH Director!

View the  YouTube Live as the All of Us Research Program Speaker Series in partnership with the National Library of Medicine shares the inaugural talk by National Institutes of Health Director Dr. Francis Collins. Dr. Collins. He discussed the importance of All of Us, how far the research program has come, provided a preview of the program’s future, and took questions from viewers.

Closed captioning in English and Spanish will be available.

For more information, visit joinallofus.org/conversations.

Science Multipart Series on Consumer Genetic Testing

Science Multipart Series on Consumer Genetic Testing

This multipart series available from Science News offers helpful information for those of you who ever wondered if genetic testing was for you. The articles include: a 411 on consumer testing; what tests tell you about health; privacy issues; ancestry options; finding family; and several other valuable topics.

Science News is a publication of the Society for Science and the Public published since 1921 and is for lay readers.

Want to know more about Genetics?

Want to know more about Genetics?

The Genetics Home Reference offers easy-to-read summaries of about 1,200 genetic conditions, more than 1,450 genes, all of the human chromosomes, and mitochondrial DNA. New and updated summaries are added regularly. The Genetics Home Reference also strives to provide topical information. See recently added entries to the educational primer, Help Me Understand Genetics, discuss Neanderthal DNA, genome editing, and newborn genomic screening.

ALL of US Program Launched May 6, 2018

ALL of US Program Launched May 6, 2018

Dr Francis Collins, Director of the National Institutes of Health (NIH), describes the All of Us Program in a recent blog. You can choose to be a participant in this research resource of data and biological samples. You can consent to contribute online health data, complete health surveys, and provide electronic health records. In the future physical measurements, blood and urine samples may be requested. If you enroll, you will be an active partner and get your information back which may help you learn more about your health. The Director’s blog also lists video links to information that may help you decide if you want to be one of the million volunteers to help speed medical discoveries.

DNA Day April 25, 2019

DNA Day April 25, 2019

NHGRI notes, whether you realize it or not, many parts of our daily lives are influenced by genomic information and genomic technologies. Genomics now provides a powerful lens for use in various areas - from medical decisions, to food safety, to ancestry. See the video that describes the celebration and review the 15 ways that genomics has and will continue to transform our world.